Christmas

As it is half past midnight, merry christmas one and all! My mother is in her bedroom doing "things" which me and my sister are not allowed to see, and I'm looking forward to the festivities of tomorrow/later even though I'm feeling less than festive.

I'm no scrooge, I love christmas. I reckon its just because its crept up on me so fast, because I've been so preoccupied with school and hospitals that it suddenly came, and "oh! It's christmas eve!"

I've somehow managed to prepare, and have bought all my gifts, but the logistics of the whole thing concerns me slightly, as I am still quite unwell. I'm sure I'll still enjoy it, but its just things like, I can't walk as far, and probably can't eat as much, or veg out on the sofa without moving for too long.

I've been so ill for the majority of this year, that it seems strange to think that this is the first christmas I'm having while being ill. I've had christmas in pain before, but never actually very sick...

My tuscaloosa heart

I've been intending on posting for a few days, but I've been quite ill so I haven't really had the chance.

I fiiinally have another rheumatology appointment this monday coming (13th) where hopefully the doctor might put me on some medication which has more of an effect than the stuff I have at the moment.

I also have an appointment for a 24 hour ECG which I'm happy about, because I've been having these palpitations for a while and quite recently they've felt quite irregular. This obviously concerns me, because apparently Hughes Syndrome (the theory the GP basically poo pooed, because I'd found out information myself) can cause valve problems (which presents as palpitations etc) so in a way I'm hoping it does show up that, so I can prove to these doctors that I know what's going on isn't right...
Only problem with this ECG is that I have a friends 18th birthday meal that evening, so I'll have this heart monitor in my dress. I guess I can just try and pass it off as an unusual necklace...