You can have an update though. I'm back at school, went back last Monday. Only doing half days but since I have so many frees I'm only missing 2 lessons a week. So all in all its going okay, even though I am in a wheelchair, and my school is definitely not wheelchair friendly... There's one ramp to get into the building, no wide doorways and at least one step to get into each classroom.
But anyway, I was going to tell you about my theories. I'm afraid this post might take me a while to complete because I've recently developed pain in my lower arm. Hmm...
For a start, since I have lupus, there's a 1 in 3 chance I'll also have a clotting disorder called Hughes syndrome, or sticky blood. Add to this that I have the symptoms of headaches, very blotchy skin and quite severe memory problems. And I've recently found out that giddiness is an actual symptom, for which I am now more concerned. Also, my mum had a stroke at 39 (I think?) and they never found out what had caused it, and Hughes syndrome is apparently the cause of 1 in 5 strokes in under 45's.
Also, they're suspecting now that my back and leg problems are arthritis, but I now really want them to just tell me it is so I can get things done, just simple things like doctors notes for more time in exams because writing hurts my wrist, or a note for the universities and benefits for disabilities.
As well as the arthritis, I'm concerned that I could have fibromyalgia as well. Its another thing that many people with lupus have, and it's only something that occurred to me a long time after getting the odd pains. Like someone touches me on the arm and I'll almost scream out in pain.
You can see why I'm concerned.
