I'm one of these medical mystery types. Described as "a complicated case" in case I hadn't noticed over the past three and a half years, I think we're finally getting somewhere. This is my diary of living with the illness and disabilities, without knowing what I'm fighting.

Thursday, 7 October 2010

Return from the trip.

The trip was good, but long. It was a lot of walking around compared to my normal sort of routine, but we managed to get to a few outlet malls, which made it all better.
There was a lot of driving involved, about 3 hours a day, which doesn't sound like a great deal but when driving makes you feel so ill and being sat down in one position for a long time causes so much pain, it seems a lot longer than it is. We stopped every hour/hour and a half maybe, so each 3 hour journey seemed like it took all day.
We stayed at my Uncle's for 2 nights and at a hotel in Cambridge the other night, and I didn't sleep too well any of those nights. I kept waking up from pain, and feeling ill, so I didn't particularly wake up refreshed, but I rarely have since I've been ill, since one of the main symptoms is extreme fatigue, and since I was getting up much earlier than I would normally, that didn't help.
However, even though I was getting up earlier, I couldn't fall asleep any earlier at night, so since I've been home I've been trying to catch up on the sleep, but was completely unsuccessful until today. On Tuesday and Wednesday, I woke up before my alarm went off, but today I slept until gone half 12.

Also, today is 2 months I've been taking my hydroxychloroquine. This should be the window where the medication starts working. Wish it luck.

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